The Leukodystrophy Newborn Screening Action Network is hosting an in-person LDNBS Advocacy Bootcamp on October 15, 2021 at The Study in Philadelphia, PA!
Our objective for this event is to equip/energize advocates and organizations to work together to pursue NBS for leukodystrophies and LSDs in their home states and countries. There will be three parts to this one-day event: speaker presentations, organization booths, and advocate-stakeholder networking. We want advocates to leave this bootcamp feeling more knowledgeable, prepared, and excited to help.
This isn’t something that any of us can do on our own - it takes all of us working together, across leukodystrophies and organizations, and that’s why LDNBS Action Network exists - to bring everyone together for our common goal of Newborn Screening for leukodystrophies.
Basic Event Agenda (tentative)
Thursday, October 14th | 5:30pm - 7:30pm | Evening Welcome Reception (optional)
Friday, October 15th | 8:00am - 5:00pm | Full Day of Programming with Afternoon Networking Reception